A diagnosis of myasthenia gravis can be a protracted ordeal for many patients. Muscle weakness is invisible: symptoms wax and wane or can mimic those of other conditions. Unless a physician has a high degree of suspicion, a diagnosis of myasthenia gravis might be missed.
Just as each person’s experience with myasthenia gravis is in some way unique, no one treatment fits all situations. Caring for patients requires time, judgment and experience by a physician with expertise in this disease.
Our Medical Advisory Board (MAB) focuses on helping myasthenia gravis patients experience timely diagnosis and effective medical care through training seminars for health professionals, physician-to-physician consults and patient education programs. Members advance the foundation’s working relationships with pharmaceutical and biotech companies by encouraging the development of new or improved therapies for myasthenia gravis .
All MAB members must have expertise in scientific study or the clinical aspects of myasthenia gravis. They comprise a dedicated and talented group of physicians and scientists from California’s top universities, clinics and medical centers which include:
California Pacific Medical Center
Cedars-Sinai Medical Center
Harbor UCLA Medical Center
The Neurology Center of Southern California
University of California, Davis
University of California, Irvine
University of California, Los Angeles
University of California, San Diego
University of California, San Francisco
University of Southern California
Our MAB promotes medical education programs to expand knowledge of MG among practicing physicians so they can recognize the disease and better understand ways to treat it. Medical symposiums and physician conferences are scheduled on a biennial basis in central locations throughout California.
Consult Members of the MAB provide advice and counsel about MG directly to physicians and other health care providers requesting this service. The belief is that we are all partners in the effort to eradicate this disease.
The integrity of the doctor-patient relationship is based on strong communication between both parties. Informed patients are active participants in securing medical care and, with greater understanding, comply with their physicians’ important treatment directives.
Each year, MGFC sponsors spring and fall meetings which feature lectures by members of the Medical Advisory Board or other MG experts. After formal presentations, there are ample opportunities for myasthenics to ask specific questions pertinent to their unique illness.